3 responses

  1. Lori Stilger
    May 3, 2012

    Hi! A friend shared this post with me, and I really appreciate it – I’ve got diabetes, and after ten years, it’s still not controlled.
    ANYWAY. I would love to share this post on my blog, and link to both your blog and the book’s purchasing page. If you have any questions or concerns, I’d love to correspond! :)
    Thank you. And BE BLESSED! I’ll wait to hear from you.

    • admin
      May 3, 2012

      Thank you, Lori… And thank your friend for sharing. Please feel free to reprint as you have mentioned. Just add Reprinted with Permission. Bless you!

  2. Wayney
    May 5, 2012

    This is a wonderful post. Some years ago, I wrote an item basically about how NOT to treat people with rheumatoid arthritis. Some people feel it was too dark or in your face. But I was writing not from my own perspective but the perspective of the numerous people who I saw were having a hard time with their families and friends getting it. I worded it more “in your face” in a way because it reflected the frustration of people who had tried and tried but were either ignored or not believed. This is an excellent list of how people SHOULD treat those of us with chronic illnesses. I’d love to link to this and the book on my blog as well as sharing this list. I’ve begun a modified Project 365 where there are some twists since if I took a picture a day, it’d be rather boring because I do not get out and do much since there’s a heavy price to pay for being overly active. I enjoy my 2 days a month of visiting the nursing home where I was a resident for 2 years while re-learning to walk as well as just take care of myself. Being in a nursing home at 32-34 is a bit of an odd situation. But I very much enjoy going back as part of a ministry group.

    On my blog, rather than doing a picture a day, I share something health related, either a link to another blog post with some quotes, a news article, or even something I have written. I did a 30 posts in 30 days challenge for Health Activist Writers Month from WEGo Health and in researching something came across Rest Ministries again. When I heard of Project 365 and saw that people were putting their own spin on it and decided to do the same since I don’t take a ton of pictures. This would be a perfect item to share as part of my Project 365!

    Number 7 “Ask, “Would you be willing to talk to a friend of mine who has recently been diagnosed with a chronic illness and offer her some encouragement?” It makes one feel good to know that her experience can offer someone else hope and that God still has a purpose for her life.” This is one I am always willing to say yes to no matter how bad I am feeling.

    On the following one, “Don’t tease her and call her “hop along” or “slowpoke.” Comments you mean in fun can cut to the quick and destroy her spirit. Proverbs 18:14 says, “A man’s spirit sustains him in sickness, but a crushed spirit who can bear?”” This is one of those that, for some people and especially for me, I am not offended by teasing by friends and my close family members. I joke and call myself a “gimp”, my son and husband jokingly threaten to push my wheelchair out into traffic when leaving a store, etc. I’ve always laughed at myself and my husband, 10 yr old son and close friends all do the same. In fact, when I first had to use a wheelchair to go shopping at the mall, I was a bit frustrated about it and kinda down even though I knew it was the best thing for me. So, in order to cheer me up, my husband was being silly. He was making revving noises or if we needed to back up, he’d beep. There was one store I was wanting to go in, but the aisles were too narrow for me in the wheelchair and it was a bit too crowded. So he left me in a seating area outside the store. As he walked off he told me to behave or he’d take me and leave me and go home without me. The elderly woman sitting there thought he was serious but he was just trying to make me laugh.

    When I make stupid mistakes such as putting the milk in the cabinet and the cereal in the fridge or something like that, what else is there to do but laugh at yourself? You can either beat yourself up over it, or laugh it off. If I can laugh at myself, why should I not expect others to do the same? As long as they are not being cruel I don’t mind about innocent teasing. In fact, during my 11 month hospital stay while I was not alert and oriented and when I was still recovering my son and husband stopped picking on me for a good long time. In fact. I had to say something to get my husband to pick on me again. My son, reacted sooner however. I was eating a bag of potato chips and had tipped the bag up to my mouth to get the crumbs out of the bottom. That was the first I’d been able to eat chips in months because of my nausea. So I was gonna eat all I could. My son caught me and called me a piggie. He thought he was in trouble when I very quietly asked what he said. I was just trying to keep a straight face. So for me, and other people I know, laughing at their disease is one way that keeps the disease from winning so to speak.

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