Laurie Edwards, author of Life Disrupted: Getting Real About Chronic Illness in Your Twenties & Thirties never fails to make me ponder with her thought-provoking blog posts. Below is a sampling of one you won’t want to miss.
…at times I am too busy being sick to contribute in any meaningful way to the conversation of the very health care reform that could define my patient experience.
Ironic? No, it’s inevitable. It’s life with chronic illness.
I get sucked into the Black Hole of silence even with a ton of local family & friend support, with an amazing husb&, a relatively flexible career, a world-class hospital 10 minutes away, a healthy stubborn streak, & twenty-nine years of experience living with illness. Oh, & with very good health insurance.
Scary, when you consider the millions who cannot say the same.