30 Things About My Invisible Illness You May Not Know
2. I was diagnosed with it in the year: 2009-2011 (it took till 2011 to find the sphincter odi at shands)
3. But I had symptoms since: 2008
4. The biggest adjustment I’ve had to make is: constant pain and drastic diet changes
5. Most people assume: I am healthy, as I look healthy and am thin. When I’m out is because I’m having a somewhat good day.
6. The hardest part about mornings are: constant bathroom issues and never knowing if can plan ahead.
7. My favorite medical TV show is: New York ER, I like it cause it is real life and I see the work that the doctors and staff do to try to help others in a time of great need.
8. A gadget I couldn’t live without is: my computer!
9. The hardest part about nights are: the pain and fatigue. It usually starts by 3 in the afternoon, and continues to increase by evening to an high level.
10. Each day I take 21 pills and vitamins. (No comments, please)
11. Regarding alternative treatments I: am currently seeking help through a nutritionist in hopes of receiving some valuable info to relieve some of my issues.
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I have not worked since my cancer diagnosis in 2008. Following treatment I was cancer free, but the damage from the chemo has made it impossible for me to be able to have a regular schedule.
14. People would be surprised to know: I still try to go on mission trips each summer. I was unable to this year, but am hoping the Lord will again allow me to next summer.
15. The hardest thing to accept about my new reality has been: That I may never be able to eat like a normal person and have the energy to do the things I had done most of my life until the last 5 years.
16. Something I never thought I could do with my illness that I did was: continue on mission trips to the Navajo Nation.
17. The commercials about my illness: there are none for Sphincter Odi, but the colitis and fibromyalgia, medication ones are not encouraging as the meds cause so many side effects.
18. Something I really miss doing since I was diagnosed is: going out to dinner with my family.
19. It was really hard to have to give up: church on Wednesday nights. I’m usually just so fatigued by evening and have to take medicine that makes me drowsy so I can’t drive.
20. A new hobby I have taken up since my diagnosis is: art class. I love it! We do all kinds of art, painting, ceramics, paper painting art, etc. I love the interaction with others and it takes my mind off the pain.
21. If I could have one day of feeling normal again I would: spend it enjoying the time with all my family. Doing something we used to do, go to a water park! We had so much fun doing it before.
22. My illness has taught me: to cherish the times I have good days with lower pain, and to always remember that God is with me. I may not have chosen this path for myself, but I believe that through Him I can still have a full life and be used by Him in many ways!
23. Want to know a secret? One thing people say that gets under my skin is: “How are you feeling? You look great!” LOL. Not that I don’t want a compliment, but I feel like they really don’t want to hear how I feel. I’m learning to give very brief answers that don’t really disclose much unless they really look in my eyes and say, “how are you really?”
24. But I love it when people: when a friend calls or stops in just to say hi and visit for a bit, especially when I’ve been down for a few days or weeks without going out.
25. My favorite motto, scripture, quote that gets me through tough times is: 2 Corinthians 1:4 “He comforts us every time we have trouble, so when others have trouble, we can comfort them with the same comfort god gives us.”
26. When someone is diagnosed I’d like to tell them: “Try not to look at it as something all bad, you will have times that are good and times that are tough, but you will if you choose, draw much closer to the Lord, seeing Him in everyday activities, more than you ever have before.”
27. Something that has surprised me about living with an illness is: finding out how many other people also deal with invisible illnesses.
28. The nicest thing someone did for me when I wasn’t feeling well was: drive me to the doctor when my husband was unable to do so.
29. I’m involved with Invisible Illness Week because: I want others to be encouraged and given hope, knowing they are not alone.
30. The fact that you read this list makes me feel: Encouraged and hopeful that each of us care about one another and desire to grow together as individuals and as a group! Let us each extend our hands, hearts and lives to be lights and reflections of those who choose to live life as full as possible and to share those lives with others around the world.